Update

We have spent the fall visiting every doctor that the girl sees at Children’s.  She has these little issues that keep creeping up.  First we had some changes in the way that she runs.  We had muscle testing at Children’s (and of course her PT has been watching) and until recently she seemed strong, just uncoordinated.  She started falling and having some accidents again in early September. We had the routine muscle testing (again she tested strong) and bladder testing (CMG).  The CMG wasn’t  normal, but it wasn’t anything like pre-surgery and it wasn’t terribly alarming.  The urologist put the girl on a medicine that would control bladder spasms, and suggested a different laxative to see if we could get past the accidents.  The Dr. was concerned about the accidents and walking issues, and encouraged us to call the neurosurgeon.  The neurosurgeon ordered an MRI and a follow up sooner than the previously scheduled December MRI.  So, the girl will have an MRI on Tuesday and we will learn the results the following Monday.  I’m hoping that this is just a “better safe than sorry” MRI, but the “strength” of the girl’s legs is changing (as of this week).  I’m glad we can get this checked next week, but we’re all still a bit grumpy about more doctor visits!

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