Time is zooming by and I haven’t given an update in a long time.  The girl had a great initial recovery following surgery and spent the summer getting stronger.  However in September, some of the symptoms that led to the surgery returned.  We went for her bladder testing and had about 3 weeks of frustration trying to communicate with doctors.  We finally visited the urologist for the follow up after the CMG.  The test wasn’t “normal”, but definitely did not totally explain the accidents.  We are trying a new medicine and will see the urologist again in 6 weeks.  Additionally we were asked to follow up with the gastroenterologist and the neurosurgeon.  The neurosurgeon ordered another MRI (10/30) and follow up with him (11/5).  I’m hoping that this is a “better safe than sorry” MRI and that nothing is wrong.  I’m praying that the girl is just taking a little longer to recover than the “average” child.